As the end of the year of the tiger approached ( where did the year go really, time seems to be picking up pace and I try to keep up with it, not always successfully, might I add ) I tried to find a[...]
Last Thursday I was peacefully browsing the Evening Standard when a little article caught my attention. It talked of Royal Brompton Hospital and the fact that it seems[...]
Significantly, RBH has won their High Court Judicial review on the closure of the hospital’s children’s heart unit. You can read the full information on the hospital’s site, the link to which you will find at the bottom of this post, but while the issue hasn’t been put to rest as yet, I choose to remain hopeful and want to extend my gratitude to all of my friends, Glenda Jackson M.P, supporters and the people who read my post and chose to add their support to this worthy cause.
Your support, letters and e-mails have been invaluable and give me renewed hope that kindness, love, dedication and hard work prevail in our world and there is justice for this very just cause. Royal Brompton is a hospital and no one wants or chooses to be sick, but it is a place which gives hope, support, incredible care and has an amazing team of surgeons, nurses and a huge network of support teams that save kid’s lives on a daily basis.
In Russia people elect their deputies (deputaty) into the State Duma, yet as soon as the vast majority of those people enter office, they forget about the people, who elected them into the public (!) office, and their election promises and get on with enjoying the privileges and increasing their wealth and public profile for personal benefit. In the UK, on the other hand, the rules of the game vary significantly. MPs are very concious throughout their time in the office to whom they owe their position and make sure they meet with their constituents and take their responsibilities seriously (not to say that there aren’t people who take advantage, but nowhere close to the level it is common in Russia).
You probably remember my post about Royal Brompton Hospital and their plight in regards to the possibility of closure of their paediatric cardiac services. I e-mailed my local M.P. Glenda Jackson, not really hoping to hear from her, as my e-mail was sent too close to the case being heard in Court. Yet, to my very pleasant surprise, I received a personal letter from her on October 20th, which addressed the issue raised on my behalf with Rt Honorary Simon Burns MP (Minister of State for Health). His position, unfortunately, did nothing to answer my concerns. The Minister was reluctant to engage with the issue raised, so Glenda Jackson M.P. suggested that we await the outcome of the panel’s deliberation.
While I greatly appreciate my MPs involvement in the cause very close to my heart, I don’t understand the position of the Health Minister. In the copy of his reply to Glenda Jackson he states that ‘the Safe and Sustainable review of children’s heart services is being carried out within the NHS by the National Specialised Commissioning Team on behalf of the ten regional groups that commission specialised services, such as children’s heart surgery, across England’. He added that ‘while we are following its progress closely, it is not a Government review so I am not in a position to address your constituent’s concerns.’
Further down this letter there is another big paragraph that I am going to let you read first:
‘The review was instigated as a result of increasing concerns held by surgeons, other clinicians and NHS commissioners over a number of years about the risks posed by the unsustainable nature of having smaller surgical units. The aim of Safe and Sustainable is to ensure that children’s heart surgery services in England deliver the very highest standard of care for children and their families well into the future’. The development of the proposed model of care has been led by many clinicians directly involved in the care and treatment of children with congenital heart disease. This has been very much clinically driven.’
When I read this paragraph, I almost choked on the cynicism of the words. This issue is not only political, it involves funding issues and lots of under the carpet games and favours. I have seen first hand the work going on at the Royal Brompton, on both of their paediatric wards, the intensive care (PICU) and the Rose Ward,where kids go to recuperate after their condition stabilises post surgery/procedure in PICU. Rose Ward provides monitoring, physio, dietary advice, medication review among many other things before a child gets discharged home. To even put the
What never ceases to amaze me that is that Brompton hospital accepts many very sick patients that other hospitals aren’t equipped to treat, yet their mortality rate remains one of the lowest across UK hospitals board-and believe me when I say that they treat very sick children and adults indeed.
People who work at Brompton, be it the catering team, the nurses, the surgeons, dietitians, pharmasists or a physios not only are incredibly skilled, but most of them possess almost un-human empathy for their patients, not only that, they also extend incredible kindness and help to the families of their patients.
I was rendered speechless, and believe me, it’s a rare occurrence, when in February as part of Safe and Sustainable review of children’s heart services in England by joint committee of primary care trusts, it has been recommended that Royal Brompton’s heart surgery for children should stop-if that happens, all other services for children treated at Brompton will follow, including their long-term cystic fibrosis patients. Royal Brompton hospital, where Diana, Princess of Wales used to be a patron, is primarily heart and lung hospital, well known all over the world, yet some bureaucrat who obviously doesn’t care about the people and who has never experienced the anguish of a child being incredibly sick because his heart is failing, thought it is a good idea to take away the cardiac surgery away from Brompton.
What is this country coming to, if someone in the high political or bureaucratic hierarchy is even contemplating the idea of closing one of the best hospitals this country has-what chance would sick children with heart and lung disease stand to be treated-and time is precious commodity for many of those children, sometimes it’s a matter of days, if not hours. I have seen children go from struggling for a breath, while they await surgery or an organ transplant (with cystic fibrosis it’s often not only the lungs that are ravaged by disease, by stomach and heart too for example), to them making an amazing recovery due to superhuman efforts of the Brompton team-doctors do work in shifts there, but they often overstay their hours, going beyond their call of duty and every day making it their professional mission to find the solution to the most complicated problem-bear in mind that even the most experienced surgeon doesn’t get paid anywhere close to the bonuses bankers receive and even very experienced cardiac nurses struggle financially, yet they all give so much more to society with amazing dignity and grace, when the stresses and pressures of their jobs are enormous.
Doctors and nurses see deaths on a daily basis and one would think that in order for them to do their job and remain sane in the process, they need to distance themselves, think pragmatically and logically, but I know for a fact that Brompton’s PICU and Rose Ward staff actually take their patients to heart, soothing them, reassuring them and trying their hardest to help their little patients to regain their health, if possible.
Another thing that is wonderfully refreshing, forgive the pun, is that Brompton doesn’t even smell like a hospital when you go through its sliding entrance doors and it feels like home to many families whose kids have long-term health problems. Brompton has many long-term kids i.e patients that they see from diagnosis throughout treatments, surgeries and recovery and parents end up ‘living’ on the chairs placed beside their children’s beds. Most of us take good health for granted, but think for a moment that your child is so sick, he or she needs to be hooked up to machines to help them breath, oxygenate their body and monitors to keep track of their heart rhythm, blood pressure,etc for days, if not months and that the only home that the child knows are the four walls of the cubicle that he shares with three or five other little patients-Royal Brompton is a home and a place of hope for many children and their exhausted and worried families.
I have signed the petition and urged many of my friends to do so, yet my local MP, Glenda Jackson, didn’t even bother to reply to my e-mail, urging her to get involved. I believe in fighting for what you believe in in a peaceful way, and I think RBH deserves to continue doing what they do best, saving lives and giving hope to their patients, be it grown-ups or children. When you are a a member of the hospital team you remain under under scrutiny and constant pressure and stress, so I think that places like Royal Brompton deserve all the support they can get because they make our already fragile world a much better place for being in it. Yes, only a person who actually lost a family member can truly understand what agony the families of the heart and lung patients go through on a daily basis, especially if it’s a newborn baby boy or girl who is struggling to breath or a teenager, who you love beyond words, yet you can’t help him or her and have to delegate that care to someone else.
Pause for a moment and imagine that you can develop lung disease or a heart problem at any moment, after all noone knows what tomorrow will bring. Royal Brompton remains a source of hope and inspiration, a place that makes a difference to thousands of people in their quest for health and gives hope to parents of very sick children. Now look me in the eye and tell me that you don’t feel like getting involved………